Sjogren’s syndrome often accompanies other immune-system disorders, such as rheumatoid arthritis and lupus and hashimoto's thyroid.
We did a small informal survey on facebook asking Sjogren's sufferers if they had other autoimmune conditions as well as Sjogren's. Seventeen women responded. This is what they said:
4 had Hashimoto's thyroiditis, an underactive thyroid condition.
1 had Graves disease, an overactive thyroid condition.
3 had a type of myositis.
4 had Rheumatoid Arthritis RA.
3 had Lupus.
2 had Celiac disease.
1 had Diabetes.
2 had Scleroderma.
1 had Ankolysing Spondylitis AS.
6 had Raynaud's disease.
6 women had 3 or more autoimmune conditions. Some mentioned other conditions that were not immune related diseases.
Labels: Fact of the week
|one-pot roasted salmon, rice and vegetables|
Apparently Venus is on a vegan diet to combat her symptoms. There are rumors she’s dabbling in the gluten-free diet as well."
Melissa is author of The Gluten-Free Edge
Do you have Sjögren’s and celiac disease or celiac intolerance?
What do you think? Should people with autoimmune conditions follow a gluten-free diet?
Have you tried a gluten free diet to help your Sjögren’s Syndrome?
What you can win: 2 great books about Sjogren's Syndrome!
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Here are just a few of the posts you may like to add a comment to :
- Sjogren's Books - a list of SS books
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If you are on facebook please join us there for giveaways, games and information about Sjogren's that you can share. There will also be many opportunities for you to share your story.
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Helping others hear about Sjogren's Syndrome and understand about it is the beginning of community awareness and the first step in getting more research into the disease.
I was diagnosed at the age of 2, very uncommon, and I am now 24.
The past couple years I have been developing more problems and discovering different symptoms connected with my SS.
Last year I had a lung biopsy and am now taking an inhaler as needed. I started seeing my Rheumatoid specialist at the age of 14 and it was discovered that I had rheumatoid fluid in all my joints. The fluid has decreased but pain is reoccurring.
The most common symptoms I have are: chronic arthritic pain as well as inflammation in my periodic/salivary glands. I have changed my diet and am now trying to be gluten free. Gluten causes inflammation, which SS can tend to be associated with. I have only been gluten free for a few months, however, I do see a difference in how I feel overall.
I am glad I discovered this blog. I find it interesting reading other's experience with SS since I've never met anyone else with this disorder considering it is very rare at my age.
Nina Rawls has Secondary Sjogren’s Syndrome, meaning it occurs in the presence of another connective tissue autoimmune disease, in her case lupus.
“With my finding, I am now an advocate for Sjogren’s syndrome awareness, early diagnosis and treatment. I’m learning that although there is no cure for the syndrome, there are treatments that can greatly improve my troubling symptoms and will prevent further complications,” concludes Rawls. “I’m hoping a greater awareness of the syndrome will push others to be more pro-active in talking with their doctors and dentists about their symptoms and gain potential treatment options.”
From PR Web where you can read the full story.
Read more about Secondary and Primary Sjogren’s Syndrome
Labels: in the news
The symptoms of Sjögren’s Syndrome vary greatly between individuals.
Symptoms include a dryness of the moist areas of the body, like the mouth, eyes, ears, nose and vagina. Fatigue and depression, plus painful joints, are also associated with the disease.
When organs other than the lacrimal and salivary glands are affected, this is known as “extraglandular involvement.” Usually, this occurs in patients with primary Sjögren’s syndrome (see “Primary Versus Secondary Sjögren’s Syndrome”).
Manifestations of Primary Sjögren’s Syndrome include :
- joint inflammation
- particular forms of autoimmune thyroid, kidney, liver, lung, and skin disease
- changes in nerve function of the upper or lower limbs
- small proportion of patients may progress to a form of lymphoma
Did your specialist define this?
RESOURCE: National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Sjögren's Syndrome Foundation is promoting Bold Blue Day.
Do you know of anyone else doing something specially for Sjogren's awareness this month? Please let me know so I can post it here.
Also if you would like to help spread the word please post this on your social networks using the handy little buttons below - Cheers.
|Gluten: Wheat, rye & triticale|
Want more information: Institute of Medical Technology, University of Tampere, Finland: Celiac disease and markers of celiac disease latency in patients with
primary Sjögren's syndrome.
Read more about gluten (wheat, rye and triticale) and Sjogren's Syndrome and my personal story here.
Do you have a problem with gluten?